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MPN Voice @UC-S_Ic321-snfvnco9ypyUg@youtube.com

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MPN Voice’s mission is to provide clear and accurate informa


20:24
MPN-SVT Study – interviews with individuals diagnosed with MPN-SVT
16:58
In Conversation with… Tobe Aleksander, PV patient, participating in the Mithridate Study
11:50
In Conversation with… Mark Taylor, PV patient and MPN Voice volunteer
21:44
In Conversation with… the My MPN Voice app team
01:25:12
MPN Voice virtual forum - My MPN Voice App held on 16 May 2024
15:03
In Conversation with… Gill Thomas, MF patient
17:25
In Conversation with… Mary Zazzi – ET patient, diagnosed in 1983
01:32:29
MPN Voice virtual Forum - post ASH Updates held on 8 March 24
12:55
In Conversation with… Dana Turner, a young MPN patient
03:35
Festive message from Nona Baker, Co-Chair and Prof Claire Harrison, Medical Director, MPN Voice
27:47
Living with MPNs Day 181123 - Session 2 Scientific updates in MPN, Professor Adam Mead
09:08
Living with MPNS Day, 181123 Session 3 Patient Talk, Margaret Cooper
19:53
Living with MPNS Day 181123, Session 4 MPN Targeted Immune Therapies Professor Beth Psaila
09:35
Living with MPNS Day 181123 Session 5 Experiences of a young MPN patient Alice Watson
21:18
Living with MPNS Day 181123, Session 6 Management of cardiac risk Dr Patrick Harrington
16:22
Living with MPNs 181123 Session 7 carer’s perspective ANP Mary Kelly
22:35
Living with MPNs Day 181123 Session 8 Managing side effects of therapy Dr Nauman Butt
18:31
Living with MPNs Day 181123 Session 9 MPN Trials in the UK, Professor Claire Harrison
10:25
Living with MPNs Day 181123 Session 10 My journey with ET and my experience using interferon
14:20
Living with MPNs Day 181123 Session 11 MPN Voice objectives for 2024 and beyond
51:59
Living with MPNs Day 181123 Session 12 Panel discussion, questions from the audience
33:25
Living with MPNs Day 181123 Session 13 New treatments targets for MPN Professor Serge Verstovsek
08:40
Living with MPNs Day 181123 Session 1, welcome & introduction, Nona Baker, Co-chair MPN Voice
15:41
In Conversation With … Gabor Posta, a young MPN patient
11:42
In Conversation With … Orlando Agrippa, Head of Sanius Health, talking about the My MPN Voice App
15:32
In Conversation With ... Paul Goode
01:24:33
MPN Voice patients’ virtual forum 19 Oct 23, Young People and MPNs
14:01
A very special interview with Dr Patrick Harrington regarding Covid vaccines and MPN patients
04:18
In Conversation With … Dr Claire Andrews, Consultant Haematologist, St Vincent’s Hospital, Dublin
04:14
In Conversation With … Sarah Connolly, Candidate ANP Haematology, University Hospital Galway
03:22:14
MPN Voice patients’ in-person forum Galway, Sat 24 June 2023
01:28:53
MPN Voice patients’ virtual forum 27 Jul 23, focus on PV
10:26
In Conversation With … Annette Matthews
07:35
In Conversation With … Dr Arvind Pillai
01:28:13
MPN Voice patients’ virtual forum 25 May 2023, Genetics and MPNs
34:46
A very special interview with Nona Baker Co-Chair of MPN Voice and Professor Claire Harrison.
11:53
In Conversation With … Alisia O’Sullivan
13:26
In Conversation With...Prof Lesley Anderson
01:07:26
MPN Voice patients’ webinar, London 30 Mar 23 – updates & latest research from ASH annual meeting
07:52
In Conversation With … CNS Avril Gleeson
13:06
In Conversation With …Dr Nauman Butt
03:28
Preventative Med
01:16:48
MPN Voice 'virtual' webinar 12 Jan 2023 - Menopause, HRT & MPNs
14:21
In Conversation with ... Maz Campbell-Drew
10:10
MPN Voice Executive Committee - Seasons Greetings 2022
05:09
In Conversation With... Dr Eibhlin Conneally
10:58
Living with MPNs Day 051122 - Session 3 My Journey from ET to MF
14:12
Living with MPNs Day 051122 - Session 1 Welcome to MPN Voice
11:47
Living with MPNs Day 051122 - Session 5 Living with ET Experiences of a young person with an MPN
14:51
Living with MPNs Day 051122 - Session 6 MPN and COVID
13:13
Living with MPNs Day 051122 - Session 7 Management of MPN symptoms
44:17
Living with MPNs Day 051122 - Session 8 What do doctors and patients want from consultations
09:45
Living with MPNs Day 051122 - Session 10 Fundraising
27:12
Living with MPNs Day 051122 - Session 9 Recent clinical and scientific research in MPN
55:24
Living with MPNs Day 051122 - Session 11 Panel discussion
37:36
Living with MPNs Day 051122 - Session 12 My MPN history by Professor Ruben Mesa
24:26
Living with MPNs Day 051122 - Session 2 Prognosis and Risk of Transformation
17:38
Living with MPNs Day - Session 4 Special considerations and experiences of young people with MPNs
01:29:30
MPN Voice patients’ virtual webinar Tue 8 Nov 22 – Stem Cell Transplants
20:20
In Conversation With … Adam Spielman